Princeton's Fight Against Neuroblastoma Cancer

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Wednesday, June 5, 2013

Relapse
It is with heavy hearts that we must share the unfortunate news of Princeton's relapse.  Princeton was scheduled for his 3 month scans this week.  Yesterday, he had a bone scan that showed a "new" spot on his right leg tibia.  The doctors were hopeful it was just a minor injury from bumping his leg as Princeton likes to climb and jump like every other 3 year old.  His bones are much softer than average due to the nature of his treatments.  However, the MRI test today confirmed Princeton has relapsed with Neuroblastoma in his leg.  Tomorrow he will have a bone marrow aspiration to determine if the cancer has returned to his bone marrow as well.  There is a high possibility the cancer is present there as well since the tumor found on the scans is in the bone.  

Princeton was scheduled to start a new study next week using DFMO.  This is a drug used as a possible agent in helping to prevent relapse in Neuroblastoma patients.  At this point, Princeton will not be able to take part in the study.  Tomorrow we will sit down with the doctors to discuss the plan for treatment.  We are looking at 6 months of chemotherapy followed with radiation.  

Scientifically, there is not a known cure for relapse Neuroblastoma.  The survival rate drops to less than 5%.  However, we are not going to rely on statistics.  God is greater and more than able.  We are going to move forward in faith and full confidence in God's willingness and ability to heal Princeton.  

We will update with more information tomorrow.  In the meantime, we are grateful we caught it.  Had we not intended to put Princeton on the DFMO study, he would not have received all the tests he is getting this week.  God knew what needed to happen to catch the cancer.  He knew the exact tests Princeton needed to have.  More evidence He is always with us and we are never alone.   
10:43 pm edt 


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 Princeton was diagnosed with Stage IV Neuroblastoma, an aggressive form of childhood cancer, in December 2011 at the age of 2. At diagnosis, the cancer had metastizized and was found throughout his body.  He underwent 15 months of intensive treatment at Arnold Palmer Children's Hospital, Orlando Florida. His treatment consisted of 6 rounds of high dose chemotherapy, 10 surgeries, a stem cell transplant, 12 rounds of radiation and 6 cycles of immunotherapy. The treatment was grueling and difficult for Princeton's small body to handle. He finished treatment in March 2013. June 2013, Princeton relapsed. He again underwent 6 rounds of chemotherapy and 12 rounds of radiation. He went into remission in April 2014.We  know God is greater than cancer and will cure him of this disease.  We are reminded in Jeremiah 30:17 "But I will restore you to health and heal your wounds, declares the Lord."  God is the great physician and we know He will get the glory!  Thank you in advance for your prayers.

This website is designed to keep you informed on Princeton's progress and make donations to the family.  Treating Neruoblastoma is a full time job that requires long periods of hospital stays and travel.  Because this form of cancer is aggressive the treatment also has to be  aggressive.  The family appreciates your support and donations.

Donations can also be mailed to:

1676 Carbondale Ave NW

Palm Bay, Fl 32907 

  

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