The results from Princeton's scans are in...We thank God for the results we received, however, we still need to trust
in the Lord for His provision. The scans do not show any new evidence of disease, however, there is still uptake around
Princeton's eye where one of the tumors ate through his skull. Uptake, meaning the area above his right eye is highlighted
on the scans. This is reason for concern. The doctors believe the area has uptake due to the bone being manipulated
by the tumor, however, they are not certain it is not cancerous. Only time will tell. We have to keep a close
eye on this particular area to make sure it does not grow. Princeton will be checked once a month for the next year
and have a week of scans every three months over the course of the next year. There is a scientific scale that measures
a patients response to treatment: Very Good Response, Very Good Partial Response, Good Response, and down from there.
Princeton falls under a Good Response, since we do not know for sure the cause behind the uptake around his eye. We
trust and believe it is the bone and not cancer. God is the miracle healer and great physician and we know ALL things
are possible through HIM. He has a special purpose for Princeton.
We have been reminded by the doctors
on numerous occasions that Stage IV Neuroblastoma is a beast. It is very difficult to get rid of and is known to come
back with a vengeance. Cancer knows no boundaries and has no mercy. However, God does and that is where we choose
to place our faith. We have to continue to live our lives to the fullest each day and thank God for the gift of life.
We cannot live in fear or worry. Psalm 27:1 says, "The Lord is my light and my salvation - whom shall I fear?
The Lord is the stronghold of my life - of whom shall I be afraid?" God is the center of it ALL and that gives
us such great peace and confidence as we persevere through this storm.
We ask that you join
us in prayer as we have been given an option to consider placing Princeton on another clinical study. There is no proven
evidence of its long term benefits, but there is a possibility it could aide in preventing the Neuroblastoma from resurfacing.
Princeton would take a pill called GMFO twice a day for two years. As long as he is on this medication, he would need
to keep his port. The downside to keeping the port is it is a foreign object in his body, which could cause infections
if for some reason his body would decide to reject it. The benefit of keeping the port is Princeton would not need to
be injected as often. His veins are shot from the chemotherapy and it takes awhile for them to recover.
In addition to keeping the port, the GMFO is also known to effect hearing. Princeton is already experiencing
moderate/severe hearing loss in high pitch tones. This is something we prayerfully have to consider. However,
God does perform miracles. The doctors told us Princeton's hearing would never improve, only stay the same or get worse.
His last hearing test indicated his hearing in normal tones actually improved!!! The high pitch tones decreased,
but there was improvement with normal speaking tones, which is a miracle in itself. Tomorrow we will be meeting with
an ENT specialist to see if Princeton needs hearing aides to help him hear better. We believe God can and will restore
his hearing and the hearing aides will not be necessary.
Thank you again for your continued
love and support as you travel this journey with us. Your kinds words and acts of kindness have been an encouragement
to us. God Bless you.
Princeton has been doing very well the past few weeks. After he recovered from his last inpatient hospital stay
at the end of January, he really started to play and act like a three old boy should. We are so grateful and praise
God for this miracle. He has been enjoying playing outside, climbing on EVERYTHING, entertaining Ocean and just being
a real pleasure and inspiration to us all. With this being said, however, we are not back to a "normal" life,
as we don't know that will ever happen for us. After being parents of a child with cancer, virtually our entire world
has changed. Our perspective on life, our evermore awareness of God and who He is, how we relate to our children, family
and community is forever marked by this journey. We know we have a mission to accomplish, to help save the lives of
children and families affected by this disease called Cancer and strive to bring awareness that will one day find a
cure. We ask that you would stand with us in agreement, that God would give us clear direction on where to go from here.
This journey has only begun. We pray God would use our family in a way that may be honoring and pleasing to Him and
that would touch the lives of many people for years to come.
We also ask that you would pray
alongside us in faith and anticipation for Princeton's scans/tests coming up next week. We will be at Arnold Palmer
starting Monday morning through Thursday or Friday. The scans will determine how well Princeton has responded to treatment
and to see if there is any detection of Neuroblastoma. With faith and trust in God's provision, we are claiming there
is No Evidence of Disease (NED). We are anticipating good news!!! We stand on God's promise in Jeremiah 30:17
"But I will restore you to health and heal your wounds, declares the Lord."
Thank you
again for your love and support. We are encouraged by the outpouring of love we have received from so many people.
Your prayers and kind words have meant a lot to us.
Princeton was diagnosed
with Stage IV Neuroblastoma, an aggressive form of childhood cancer, in December 2011 at the age of 2.
At diagnosis, the cancer had metastizized and was found throughout his body. He underwent 15 months of intensive treatment
at Arnold Palmer Children's Hospital, Orlando Florida. His treatment consisted of 6 rounds of high dose chemotherapy, 10
surgeries, a stem cell transplant, 12 rounds of radiation and 6 cycles of immunotherapy. The treatment was grueling and
difficult for Princeton's small body to handle. He finished treatment in March 2013. June 2013, Princeton relapsed. He
again underwent 6 rounds of chemotherapy and 12 rounds of radiation. He went into remission in April 2014.We
know God is greater than cancer and will cure him of this disease. We are reminded in Jeremiah 30:17 "But I will
restore you to health and heal your wounds, declares the Lord." God is the great physician and we know He will
get the glory! Thank you in advance for your prayers.
This website is designed to keep you
informed on Princeton's progress and make donations to the family. Treating Neruoblastoma is a full time job that requires
long periods of hospital stays and travel. Because this form of cancer is aggressive the treatment also has to be
aggressive. The family appreciates your support and donations.
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