Princeton's Fight Against Neuroblastoma Cancer

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Sunday, October 6, 2013

Scan Results
It has been a little while since our last update, but it is with pleasure we can say Princeton has been handling his treatment well.  His first 6 cycles of chemotherapy in 2012 were less than desirable.  He was beyond sick and experienced many complications.  Interestingly enough, at first diagnosis, patients are hit with the maximum course of treatment.  Once a relapse occurs, they have already maxed out their options and plateau with aggressive treatment.  The chemotherapy is still effective, but not as harsh.  His body could not handle going through the trauma again.  Therefore, he still has his hair, he has energy, he is not throwing up all the time and he is able to play like a typical 3 almost 4 year old for the most part.  Although he looks good on the outside, this does not mean he is not in a daily battle for his life.  This is purely evidence of God's goodness and mercy in Princeton's life.  He has been in constant treatment for almost 2 years.  It is a miracle he is doing so well with all his little body has endured.  He certainly is our Hero!  He will start the second half of his fifth round of chemotherapy tomorrow.  

We received the results of Princeton's scans Monday.  His right tibia (leg) looks great!  There is no sign of the tumor remaining.  Thank you Jesus.  There are also no new sites.  Thank you Jesus.  However, the right orbital area on his head and around his eye still has uptake.  This means on his MIBG test, the area is highlighted showing some type of abnormality.  The abnormality is either the bone mending from the original tumor found in December 2011 or it could be Neuroblastoma.  Doctors feel it is the bone mending, but they still have some concern the site could be feeding cancer cells throughout the body, potentially causing the relapse in Princeton's leg.  There is no way to be sure.  However, the only thing for certain is that we know God is the Almighty Physician and He has great plans for Princeton's life!  

Princeton will finish his fifth round of chemotherapy Friday.  He will begin his sixth and final round October 28.  Each cycle is 2 weeks.  After Thanksgiving he will begin radiation on his leg.  Although the tumor on his leg is not evident on the scans, it does not mean there are not cancer cells lingering.  It takes a cluster of a million cancer cells to show up on a scan!  Doctors have to use all their resources in attempt to get rid of the cancer.  It's a one time shot.  Princeton's primary doctor and radiologist have decided once again not to radiate Princeton's head due to his age and the side effects it would have.  Still being in the developmental stages, radiation to his head would effect his cognitive memory, learning, vision, hearing, etc.  The risks involved with radiating this area are not worth it, considering they do not know for certain if the orbital area is the bone mending or  Neuroblastoma.  We will continue to pray for this area and believe it is just the bone trying to mend itself.  A large tumor had eaten its way through Princeton's skull and was pushing up against the leathery membrane between his skull and brain.  This is how we first discovered the cancer.  

We share statistics not because we worry about them, but because it allows us to know how to pray and it also reveals to us God's grace and goodness.  When we look at the odds and we see how far Princeton has come, it is a divine miracle!  We mentioned it before, there is 40% chance of Neuroblastoma coming back.  Once a relapse occurs the chances drop to less than a 5% survival rate.  We also know Neuroblastoma can become chronic, continuing to come back until the body says enough.  These are numbers, but we choose to serve a God who is far greater than cancer!  There is power in the tongue and we choose to speak life over Princeton and healing in his body.  We choose to believe we are going to be a part of finding a cure for pediatric cancer and make a difference in the lives of children who cannot fight this battle alone.  Luke 11:9-10 says, "Ask and it will be given to you; seek and you will find; knock and the door will be opened to you.  For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened."  We are asking for Princeton's complete healing, searching for a cure, and looking for opportunity to bring awareness. Please stand with us in prayer as we continue to ask and seek for these things.  

Please join us in prayer for the following:
Please keep our family in your prayers.  85% of marriages fail when going through something of this stature.  Praise God we have a strong, loving marriage where we strive to do the best we can for each other and our children.  However, we also know the enemy is always at work and loves to see God's children fall.  We feel very blessed to have the family we do and share the pure love we have for each other.  We just pray for continued endurance, strength and encouragement.  God never gives us more than we can handle and we firmly believe God knew we needed each other to go through this.  

We also pray for continued strength as we have baby number 3 coming around November 04.  Again, God never gives us more than we can handle.  It will certainly be a challenge, juggling a new baby and caring for Princeton and Ocean, but we know we can do it.  We are fighters, and we will fight to the end!  

Much thanks to each and everyone of you who follow Princeton and continue to show love and support as well as pray.  We are so appreciative and are blessed to have you share in this journey with us.   
9:42 am edt 


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Our Little Hero

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 Princeton was diagnosed with Stage IV Neuroblastoma, an aggressive form of childhood cancer, in December 2011 at the age of 2. At diagnosis, the cancer had metastizized and was found throughout his body.  He underwent 15 months of intensive treatment at Arnold Palmer Children's Hospital, Orlando Florida. His treatment consisted of 6 rounds of high dose chemotherapy, 10 surgeries, a stem cell transplant, 12 rounds of radiation and 6 cycles of immunotherapy. The treatment was grueling and difficult for Princeton's small body to handle. He finished treatment in March 2013. June 2013, Princeton relapsed. He again underwent 6 rounds of chemotherapy and 12 rounds of radiation. He went into remission in April 2014.We  know God is greater than cancer and will cure him of this disease.  We are reminded in Jeremiah 30:17 "But I will restore you to health and heal your wounds, declares the Lord."  God is the great physician and we know He will get the glory!  Thank you in advance for your prayers.

This website is designed to keep you informed on Princeton's progress and make donations to the family.  Treating Neruoblastoma is a full time job that requires long periods of hospital stays and travel.  Because this form of cancer is aggressive the treatment also has to be  aggressive.  The family appreciates your support and donations.

Donations can also be mailed to:

1676 Carbondale Ave NW

Palm Bay, Fl 32907 

  

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